Caregiving Vignettes “Reading with Dementia”
My husband’s Alzheimer’s and bvFTD dementia doesn’t keep him from reading, but it does keep him from understanding. He will pour over the morning paper. This morning, being Sunday, we are reading yesterday’s paper, with no complaint from him, since he cannot remember reading it yesterday. He maintains the posture and the seemingly interested voracious reader he once was when he would read encyclopedic books of world history… for fun.
His former self, smart guy, lawyer, he’d stay up late at night reading, reading… I used to put my knuckle in one ear and push my other hard into the pillow with the sheet over my head so I could block out the book light and sound of the pages swishing across the front of his chest.
So now he reads really just anything. He can still read out loud and you’d think he knew what he could comprehend because he can read it. Yesterday he was reading a local phone book that came in the mail. The pages he was reading was full of names and phone numbers. But, if you didn’t know what it was you might think it was a law book.
The “reading” keeps him mesmerized. He loves the pictures of little children and babies our local small town paper always highlights. He usually shows them to me with a sloppy grin on his face. In his previous life he wasn’t so interested in the sweet things. Pretty soon he will get up and ask me to help him turn his television on.
In the above image foreground sits my portable table easel and it speaks for itself.
Today I plan to launch my Patreon account where I will show my current paintings, poems, and short stories. Because in the midst of the dementia care, I art.